重庆儿基会20年公益路：为大病儿童点亮生命之光|中文字幕一区二区三区aⅴ吉川

**hongbanlangchuang：yizhongfuzadezishenmianyixingjibing**hongbanlangchuang（SystemicLupusErythematosus，jianchengSLE）shiyizhongfuzadezishenmianyixingjibing，zhuyaoyingxiangnvxingqunti，youqishizaishengyunianlingdenvxingzhonggengweichangjian。zhezhongjibingdetezhengzaiyujitimianyixitongcuowudigongjizishendezuzhiheqiguan，daozhiduozhongxitongdesunhai。hongbanlangchuangdelinchuangbiaoxianqianbianwanhua，tongchangbaokuopizhen、guanjietengtong、pilao、fareyijiqiguangongnengdeyichang。zuidianxingdepizhenshi“hudieban”，chengxianyulianbudeliangce，leisihudiedexingzhuang。chulepifuwai，hongbanlangchuanghaikenengyingxiangshenzang、xinzang、feibuheshenjingxitongdengduogeqiguan。huanzhekenengchuxianshenyan、xinbaoyanhuoshenjingxitongwentideng，zhengzhuangkeqingdaozhong，yanzhongshikenengweijishengming。jinguanhongbanlangchuangdequeqiebingyinshangbuqingchu，danyanjiubiaoming，yichuan、huanjingyinsuyijijisudengdoukenengyuqifabingxiangguan。mouxieyaowu、ganranhuoyangguangbaoshaiyekenengyoufajibingdefufa。yinci，hongbanlangchuangdeguanlitongchangxuyaogetihuadezhiliaofangan，yikongzhizhengzhuangbinggaishanshenghuozhiliang。muqian，hongbanlangchuangshangwugenzhidefangfa，dankeyitongguoyaowuzhiliaolaikongzhibingqing。changyongdeyaowubaokuofeizaitikangyanyao、mianyiyizhijihetangpizhijisudeng。huanzhezaijibingguanlizhong，baochilianghaodeshenghuoxiguanhedingqisuifangzhiguanzhongyao。zaimianduihongbanlangchuangshi*(*)*(*)红(hong)斑(ban)狼(lang)疮(chuang)：(：)一(yi)种(zhong)复(fu)杂(za)的(de)自(zi)身(shen)免(mian)疫(yi)性(xing)疾(ji)病(bing)*(*)*(*)红(hong)斑(ban)狼(lang)疮(chuang)（(（)S(S)y(y)s(s)t(t)e(e)m(m)i(i)c(c)L(L)u(u)p(p)u(u)s(s)E(E)r(r)y(y)t(t)h(h)e(e)m(m)a(a)t(t)o(o)s(s)u(u)s(s)，(，)简(jian)称(cheng)S(S)L(L)E(E)）(）)是(shi)一(yi)种(zhong)复(fu)杂(za)的(de)自(zi)身(shen)免(mian)疫(yi)性(xing)疾(ji)病(bing)，(，)主(zhu)要(yao)影(ying)响(xiang)女(nv)性(xing)群(qun)体(ti)，(，)尤(you)其(qi)是(shi)在(zai)生(sheng)育(yu)年(nian)龄(ling)的(de)女(nv)性(xing)中(zhong)更(geng)为(wei)常(chang)见(jian)。(。)这(zhe)种(zhong)疾(ji)病(bing)的(de)特(te)征(zheng)在(zai)于(yu)机(ji)体(ti)免(mian)疫(yi)系(xi)统(tong)错(cuo)误(wu)地(di)攻(gong)击(ji)自(zi)身(shen)的(de)组(zu)织(zhi)和(he)器(qi)官(guan)，(，)导(dao)致(zhi)多(duo)种(zhong)系(xi)统(tong)的(de)损(sun)害(hai)。(。)红(hong)斑(ban)狼(lang)疮(chuang)的(de)临(lin)床(chuang)表(biao)现(xian)千(qian)变(bian)万(wan)化(hua)，(，)通(tong)常(chang)包(bao)括(kuo)皮(pi)疹(zhen)、(、)关(guan)节(jie)疼(teng)痛(tong)、(、)疲(pi)劳(lao)、(、)发(fa)热(re)以(yi)及(ji)器(qi)官(guan)功(gong)能(neng)的(de)异(yi)常(chang)。(。)最(zui)典(dian)型(xing)的(de)皮(pi)疹(zhen)是(shi)“(“)蝴(hu)蝶(die)斑(ban)”(”)，(，)呈(cheng)现(xian)于(yu)脸(lian)部(bu)的(de)两(liang)侧(ce)，(，)类(lei)似(si)蝴(hu)蝶(die)的(de)形(xing)状(zhuang)。(。)除(chu)了(le)皮(pi)肤(fu)外(wai)，(，)红(hong)斑(ban)狼(lang)疮(chuang)还(hai)可(ke)能(neng)影(ying)响(xiang)肾(shen)脏(zang)、(、)心(xin)脏(zang)、(、)肺(fei)部(bu)和(he)神(shen)经(jing)系(xi)统(tong)等(deng)多(duo)个(ge)器(qi)官(guan)。(。)患(huan)者(zhe)可(ke)能(neng)出(chu)现(xian)肾(shen)炎(yan)、(、)心(xin)包(bao)炎(yan)或(huo)神(shen)经(jing)系(xi)统(tong)问(wen)题(ti)等(deng)，(，)症(zheng)状(zhuang)可(ke)轻(qing)到(dao)重(zhong)，(，)严(yan)重(zhong)时(shi)可(ke)能(neng)危(wei)及(ji)生(sheng)命(ming)。(。)尽(jin)管(guan)红(hong)斑(ban)狼(lang)疮(chuang)的(de)确(que)切(qie)病(bing)因(yin)尚(shang)不(bu)清(qing)楚(chu)，(，)但(dan)研(yan)究(jiu)表(biao)明(ming)，(，)遗(yi)传(chuan)、(、)环(huan)境(jing)因(yin)素(su)以(yi)及(ji)激(ji)素(su)等(deng)都(dou)可(ke)能(neng)与(yu)其(qi)发(fa)病(bing)相(xiang)关(guan)。(。)某(mou)些(xie)药(yao)物(wu)、(、)感(gan)染(ran)或(huo)阳(yang)光(guang)暴(bao)晒(shai)也(ye)可(ke)能(neng)诱(you)发(fa)疾(ji)病(bing)的(de)复(fu)发(fa)。(。)因(yin)此(ci)，(，)红(hong)斑(ban)狼(lang)疮(chuang)的(de)管(guan)理(li)通(tong)常(chang)需(xu)要(yao)个(ge)体(ti)化(hua)的(de)治(zhi)疗(liao)方(fang)案(an)，(，)以(yi)控(kong)制(zhi)症(zheng)状(zhuang)并(bing)改(gai)善(shan)生(sheng)活(huo)质(zhi)量(liang)。(。)目(mu)前(qian)，(，)红(hong)斑(ban)狼(lang)疮(chuang)尚(shang)无(wu)根(gen)治(zhi)的(de)方(fang)法(fa)，(，)但(dan)可(ke)以(yi)通(tong)过(guo)药(yao)物(wu)治(zhi)疗(liao)来(lai)控(kong)制(zhi)病(bing)情(qing)。(。)常(chang)用(yong)的(de)药(yao)物(wu)包(bao)括(kuo)非(fei)甾(zai)体(ti)抗(kang)炎(yan)药(yao)、(、)免(mian)疫(yi)抑(yi)制(zhi)剂(ji)和(he)糖(tang)皮(pi)质(zhi)激(ji)素(su)等(deng)。(。)患(huan)者(zhe)在(zai)疾(ji)病(bing)管(guan)理(li)中(zhong)，(，)保(bao)持(chi)良(liang)好(hao)的(de)生(sheng)活(huo)习(xi)惯(guan)和(he)定(ding)期(qi)随(sui)访(fang)至(zhi)关(guan)重(zhong)要(yao)。(。)在(zai)面(mian)对(dui)红(hong)斑(ban)狼(lang)疮(chuang)时(shi)